Sunday, March 31, 2024

"We Don't Do Slow"

 

Sitting in Washington D.C. traffic is like nothing else. Olivia’s ponytail hung on the back seat in front of me. Olivia, my bright-eyed, energetic caregiver was exhausted as we all were.

            “Should we look for other flights?” My mom asked.

            “No, we’re going to make the flight, Jean. That is going to happen,” Olivia stated.

            “We’re going to make it,” I said feeling weary.

We had just been at Capitol Hill in Washington D.C. and had literally walked (and wheeled) three miles that day. Going from congressional office to congressional office, telling my story, asking for funding was simultaneously exhilarating and exhausting. You can check out my video about it here.

            “Mom, it’s okay,” I said. Getting an accessible taxi took 90 minutes. This was why we were so late to the airport.

            “It’s about 10 more minutes away,” the taxicab driver well aware of our nerves explained.

            When we arrived, I got out of that taxi like it was on fire. When it was time to stand in line for security, Mom told Olivia to go to the gate the second she could. What happened next was horrific. Olivia flew through security running to the gate while Mom and I entered the checkpoint. I stuck my arms out to start the process of getting patted down.

            “We’re in a huge rush. We would appreciate it if you could keep that in mind,” Mom said. My poor mother was asking for some empathy on our part and the TSA agent replied, “We don’t do fast.”

Oh shoot. I definitely said a different word but you get the picture. 

She then proceeded to tell me that we had to go about twenty paces to where she would pat me down. This agent had control over us, and she was pure evil.

            “Can you give consent for the pat down?” the TSA agent asked me.

            I nodded and said, “Yes,” with my communication device.

            “I don’t understand you,” the agent said.

            You did, you just want to make sure my life is brutally difficult. This was a power play and we both knew it. Mom finally came over and the agent started the process. I’m used to this, so I anticipated where she was going. The pat down was over quickly. She proceeded to check my chair for weapons by wiping a cloth on the arm rests; this was standard procedure. What was not standard procedure was the fact that she insisted on opening my carry-on, taking out my wheelchair charger and scanning it again. I’ve flown at least 50 times and TSA has never had to take out my wheelchair charger. She was the epitome of someone who abused her power and loved making people miserable. Once that hellish part was over, Mom said, “Go to the gate!”

            Ladies and gentleman, you have all seen me drive fast. In the summer, I may go my fastest when Elmhurst University is empty. I crank the music up, turn the speed to max volume and think, Just never go this fast around other people. If you had told me last summer that I would  go this fast around other people, I would have thought you’d mistaken me for another brunette that uses a wheelchair. Nope…I was the crazy woman who was driving a wheelchair at a dangerous speed in Reagan National airport. I know dangerous and this was dangerous. I broke every rule that I have for myself. Gate C33…Don’t hurt anyone… Gate C33…Don’t hurt anyone…I made it to the gate. I saw Olivia.

            “Breathe, they understand. We’re fine.” Olivia said.

            Olivia transferred me to an aisle chair which is a narrow wheelchair made to go down the aisle of a plane. She buckled me in and proceeded to start unscrewing the back of my chair. Mom quickly joined her. Once they got the back down, Olivia put a cup over the joystick and spun the duct tape around my joystick at least 10 times. That joystick was secure. It would have been comical if not for the circumstances. The wheelchair was as short as physically possible. Once we were on the plane, we laughed about everything but security. Little did we know the second act was coming.

            The plane landed at O’Hare and we waited for the majority of the passengers to get off. There was a slew of kids leaving the plane too. They were very slow so the flight attendant told them to wait so I could walk off the plane. We entered the jet bridge.

            “That wheelchair does not have a seat belt. She needs a seat belt!” Olivia said.

            “We cannot let you use an aisle chair.” The airport employee said.

            At that moment, my wheelchair that had the seat back folded over and resembled a mountain of duct tape came into view. They suggested we use it. Olivia muttered under her breath, “Use common sense.” Mom had called Dad and asked him to come to O’Hare and assist with assembling the wheelchair which was why we didn't want to do it at the gate.

            “She can’t sit in that yet!” Olivia said exasperated.

            You fools!

            The pilot stopped the madness by saying, “Let her use the aisle chair. They can come to me tomorrow morning with questions.” The pilot was probably 50 years old and had a warmth about him.

Thank God!

            Olivia sat me in the aisle chair as my mom brought the wheelchair accessories such as my knee blocks and my communication device. Nope, I couldn’t say a word to these idiots, and I can’t decide if that’s good or bad. I don’t have any kind words towards these people besides the pilot.

            It’s a Hannah parade! The airport employee is pushing my precious wheelchair looking like a mound of duct tape, Olivia is pushing me in the aisle chair and Mom is carrying eight bags behind us. Olivia whispered down to me, “If someone gives us you-know-what about this not being a “wheelchair,” I’m going to lose my…”

            “That is not a wheelchair!” One employee yelled across the airport.

            Olivia is going to lose her…

            “It’s fine! I’m with them.” The airport employee said.

            As we entered the baggage claim, my thought was one, Able-bodied people are quite slow when walking and I can’t wait to go to bed!

            When we saw my dad at baggage claim, he greeted us by saying, “Olivia, this is our lives. Isn’t it neat?”

            That’s about right.

 

 

Thursday, February 29, 2024

A Slice of my Memoir

 For those of you who don't know, I met a girl named, Katherine at the camp that I used to go to. She is my best friend. We text every day. I write about her in my memoir. Here's a little preview: 

 

The next day, we went on the Slip N’ Slide. It was placed on a grassy hill. It was a red tarp with a hose. When it was my turn, I was so excited! One counselor grabbed under my legs and one under my arm pits. Once I sat down on the tarp, I had a counselor sitting behind me and we slid down. Because the counselors were so young, they could just carry me up the hill. Katherine went next. She let out a cute sounding “wee” as she went down. It was really fun. The boys walked by us and had the “fun” idea of adding soap to the water.

            One guy counselor got an industrial sized bucket of soap and poured it down the tarp. While it was well intentioned, it made it extremely difficult because everything was slippery. Before the soap, one female counselor would spray water as we went down. It was fun because it made everything easy for counselors and campers. Easy for both parties means fun however, when it becomes hard, the fun stops. The thing is the soap got into our vaginas, so you literally had 15 girls feeling very uncomfortable.

            “Didn’t like that,” Katherine said. She would skip words like “I” or “the” because she struggled with full sentences. This didn’t reflect her cognitive ability. It just made her life easier.

            “It got up there,” I said. This was indicative of how quickly we bonded.

            “That guy was so stupid. He doesn’t have a hoo-ha,” another camper remarked.

            “Ladies, we get it. Let’s shower before lunch.” One of the head counselors said.

            I was annoyed because I would have rather been on the slide instead of showering soap off. That jerk! Once the showers were completed, we ate lunch.

            “It’s probably tater tot casserole,” Katherine said.

            “Is it good?”

            “Ehhh…”

            “So, it’s questionable.” I stated.

            Katherine nodded her head vigorously.

            I took one bite of the casserole and kindly requested cereal.

            “Lucky Charms, Cheerios, Wheaties…” Courtney was perusing the options for me.

.           “Lucky Charms.”

            No way Mom would let me have sugary cereal for lunch. This was so cool! There were so many kids who were wheelchair users and who used communication devices. Typically, I stuck out like a Starbucks coffee cup in a China cabinet in my high school cafeteria. Not this cafeteria. I fit in completely. Having Katherine by my side helped too.

That is about a page of the whole story. The stories of my memoir are all about you all. You make my life absolutely wonderful! I'm grateful for all of you. I am starting to post daily Instagram videos and I put some on YouTube so feel free to hop on there and check them out!

 

Nothing but Love,

Hannah!

 

Wednesday, January 31, 2024

January...


Instagram. For those of you who are not on that platform, I’ve been doing daily videos since December 2nd. They range from educating people about my disability to simply hoping people have a good day. It’s hard work thinking of ideas every day so if you have an idea, let me know. I’ve uploaded a small amount of content to YouTube also.

I did speak to a class at Elmhurst University. It was on disability awareness. I changed it up and told them a story about a difficult week in my life. It was about caregivers calling off and what that means for me. I liked being vulnerable and sharing the not so sparkly side of life. The class had a positive reaction to my story. You can see little snippets from the Q&A on Instagram.

I was supposed to have multiple speeches this month. The majority were canceled due to weird reasons such as illness, cars not starting, and snow days for schools. I hope Mother Nature calms down in February. I have always hated January and this January was no exception. I’m ready to welcome the month of love (and pink) in.

💓,

Hannah!

"We Don't Do Slow"

  Sitting in Washington D.C. traffic is like nothing else. Olivia’s ponytail hung on the back seat in front of me. Olivia, my bright-eyed,...