Wednesday, August 31, 2022

A Busy Vacation

Olivia and I had five hours ahead of us, but it would all be worth it when I arrived. Olivia is one of my many caregivers. She is blonde, tall, and has the stamina of the Energizer Bunny. I was on my annual trip to Minnesota, and I couldn't wait to arrive. We drove through Illinois, Wisconsin, and finally Minnesota. With relief, we unpacked in the hotel room and went downstairs for a late dinner.

At 10:00 the next day, my best friend, Katherine came to the hotel to visit. The hotel was connected to the Mall of America so every friend who was coming could simply have a meal with me or go shopping. It’s a fantastic set up; I go to Minnesota once a year to visit friends from Camp Courage and I stay at a hotel connected to the mall.

Katherine and I met at Camp and have been attached at the hip ever since. I text her every day and seeing her is wonderful. Per her request, we went to Starbucks and any and every shop we could fit into in an afternoon. She has a sweet, high-pitched giggle that melts my heart.

After Katherine had to leave, I went to Kelly’s house. Kelly and I met working at a therapy center in Illinois and have remained friends to this day. Kelly, a blonde woman with a gigantic smile opened the door with her four kids in toe.

            “Hannah, will you watch me dance?” Sophie, the nine-year-old asked.

            “Hi Hannah!” Kelly said as she squeezed in a hug. Sophie had a lot to tell me which was coming out of her mouth as I rolled into the living room which had a ton of outdoor light.

            “Let me talk to Hannah, Sophie,” Kelly said.

            Kelly gave me a tour of her house which is absolutely stunning. The family has a play area and the kids showed me every trick they could possibly think of. I was in my element.

            “Mom, I have to show Hannah my dance that I made up for her,” Sophie said.

            “OK. Let’s go back to the living room,” Kelly said.

            When I was growing up, I thought the world of my parent’s friends. To this day, I have relationships with them that I absolutely cherish. I put on shows like this for my parent’s friends when I was a little girl. I was having a full circle moment and my heart felt like it was glowing. Sophie was an amazing dancer, and I couldn’t stop smiling.

            It was a very loud dinner with Sophie and the three younger boys, but it was full of love. All the kids wanted to ride my wheelchair. I bargained with them.

            “If you eat your vegetables, I’ll give you wheelchair rides,” I said.

            All four kids reluctantly agreed. The kids put their feet on top of the metal bars attached to the back wheels. Every kid loved it. I’m extremely biased but I love my friend’s kids and I think they are the greatest.

            The next day I met up with Keith, we met with Camp Courage and have remained friends for fourteen years. Keith is an animated ham and I adore being around him. I blogged about his wedding a few years ago. We caught up and walked around the mall. Keith’s phone rang and he had to take it because he’s a doctor. My goofy friend is a doctor. How did that happen?

            “Yeah, that patient…order a CT and I will follow up in a few hours,” Keith stated in a professional tone.

            Oh my lanta! Keith was important! The guy I partied with back in the day was ordering scans for his patients.

            “Keith, you do important stuff!” I exclaimed.

            “Yeah, it’s pretty cool. I love my job,” he said.

                Finally, I met up with Trinayani who is a nurse who sees patients with blood disorders. We met at Camp Courage too. We enjoyed dinner as two single women. It’s nice to have friends in all different stages of life. She is a founder of Camp Breakaway.  Camp Breakaway is for kids who have cancer to go to camp and get away from the stress of being sick. I begged her to mention it in my blog because I know this is extraordinary. To learn more, click here.

Driving back to Elmhurst and seeing my stomping grounds made me feel warm and fuzzy inside. I always want to come home to my town where everyone knows me. I love the people in my life.

Feeling Blessed and Sending Love,

Hannah!

Sunday, July 31, 2022

Caregivers and Coverage

     I’m on my way to Starbucks. It’s sunny and I’m rolling down the sidewalk to get my coffee but more importantly, to be a part of my community. The sun is warm on my legs; I’ll miss this in January where there will be grey snow to maneuver around in my wheelchair.

    I get a text from one of my caregivers asking for a day off in two weeks. I reply back saying I’ll text the other caregivers and get her coverage. No big deal.

                “Hi, Monica,” I say.

                “How are you?” the barista asks.

                “Good, how are you?”

                “Great, my daughter and I are planning a vacation together,”’ Monica replies.

One of my buttons on my communication device has, “good for you” programmed to speak once I press it. That is what I want to say so I press that button. I program every single button, so my device only has phrases that I say. I delete the generic stuff the device comes with.

                “Thank you,” Monica replies.

                “What’ll it be today?” she asks.

                “A skinny caramel macchiato with coconut milk and a pump of white mocha.”

    She puts the order in, and I roll off. It’s only five minutes later and another caregiver texts me with a request for a day off. Was it a full moon last night? No, the real reason is everyone wants one last long weekend before the leaves start to fall and autumn comes with its busy schedules. I have to remind myself that God knows what is going to happen before I even send out the texts out asking for coverage. Still, it’s a weight on my shoulders.

    After my caregiver leaves for the day, I have Zoom meetings all afternoon. One meeting is with my writing coach and other is for the Elmhurst University Alumni Committee. I’m living my best life in these meetings. They are what I want to do not what I need to do in order to maintain my independence.

    Looking at the calendar, my mind goes to who is typically available on those days. Carrie* and Samantha* are available for the one day and I could ask Charlotte* and Miranda* to switch days since they usually are able to. Two hours go by as I am emailing my orthotist (the guy who does my braces for my feet) and emailing my physical therapists regarding next month’s appointments and the occasional YouTube video because why not? I get a text from the library saying my book is ready to be picked up. Yay!

    It’s suddenly 6:00 and my evening caregiver is here. She’s making pesto with goat cheese for me when I ask her about the days that I need coverage for.

                “I think I can do that Saturday but let me check because I don’t want to say yes and then no,” Carrie says.

                “I appreciate it,” I reply.

    My phone chimes and Charlotte and Miranda are pretty sure that switching days will work. I sure hope so or its more work for me.

    Regardless of what happens, I have a devoted roommate who doesn’t mind helping now and then and if I really need them, my parents live forty minutes away.

    Caregivers calling off and having to get them coverage is a round the clock job. It’s the most exhausting part of being independent. However, the parts of my life that give me energy and life are you, my wonderful readers. You make it worth it.

Love,

Hannah!

*These names have been changed to the main characters of the TV show, Sex and the City, simply for my enjoyment.

Wednesday, June 29, 2022

To You, My Readers...

My life is the epitome of extraordinary. It's weird, unusual, crazy, blessed, wonderful, a perfectly imperfect life. I have the strangest things happen to me such as crashing through the door of a coffee shop. Who else would have that story? Nobody. It's my birthday month so I get reflective about what I've done and what I want to do. I want to do so much more than what I am doing right now. I want to constantly be serving my communities, I want to keep working on a manuscript for my book, I want romantic love, and most importantly, I want to keep loving you all.

You all are why I have these dreams. You all have taught me how to be strong, compassionate, warm, loving, and the list goes on and on. I am so grateful for everyone that reads this blog. I still can’t believe that what started out as a way to communicate with family and friends during my college years has become my blog that people ask about. I’m stunned with gratitude. I don’t know what my 32nd year holds but I can’t wait to find out!

Your Blogger,

Hannah!

 

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