Thursday, November 30, 2017

Thank you to my Team!

I had my physical recently and I got a clean bill of health. I consider that a huge blessing because it takes a team. 

This is what has to happen every year to get that clean bill of health. 

Approximately, I go to 106 physical therapy sessions. I walk on the treadmill for twenty minutes, I walk in my walker, and stretch. My primary physical therapist is Joanne. I love her a lot however, she receives a lot of eye rolls from me. I love Joanne but I don't and never will like physical therapy. It's worth every minute but it can get boring! If you're a kid or teenager reading this, therapy is absolutely worth every second of it, keep going because independence is so very worth it! Don't complain, just do it! 

This year, I started having my primary assistant stretch my hamstrings and quads every day that I don't have physical therapy. My therapist notices a difference which is all that matters. 

I started occupational therapy for shoulder pain from the dystonia. My therapist is awesome about realistic expectations of exercises I can do at home. Marylu understands the quicker, the better. All my therapists understand that I need to get back to my day. 

I have committed to standing in my walker a few nights a week. This helps everything in my body. I turn on Ellen and stand for about thirty minutes. It's easy and I should be serving my body since my body is so amazing and why I can live the life I want. 

A huge thank you to Mom and Dad who were so adamant about therapy. I take the responsibility of going to therapy very seriously because of them. 

Finally, Dr. Geotz is my neurologist and manages my dystonia spectacularly. He has been a resource, support, and overall encouragement for my family and I. 

Thank you to Nurse Luci and Nurse Carmen for always being there. I certainly don't need you on a regular basis but when I do, you're there!

This is why I can dance like a nut at a wedding, this is why I can walk a mile, this is why I can go to DC and advocate, and this is why I can live independently. I'm so thankful for the dedicated people who are watching my body. 

I've mentioned a sliver of my team. You ALL contribute and I wholeheartedly appreciate it. 
Let's do it all again in 2018!


Cherish the Ordinary

We take "our normal" for granted. Here are some moments that happened that were simple gifts.  One of the professors that...